21 papers · ranked by Valyu relevance
Hoofnagle, Chris Jay, van der Sloot, Bart + 2 more
a Schools of Information and of Law, University of California, Berkeley, CA, USA; b Tilburg Institute for Law, Technology, and Society (TILT), Tilburg Law School (NL), Tilburg, Netherlands; c Institute for Computing and Information Sciences (iCIS), Radboud University (NL), Nijmegen, Netherlands; d Institute for…
Sanchit Alekh
The GDPR, or the Datenschutz Grundverordnung (DSGVO) in German, is an EU Law which addresses the subject of safeguarding privacy of personal data of the citizens of the EU and EEA. It also specifies how data the collected data might be transported out of the EU/EEA. It is the first genuine effort to unify the plethora…
Authors not listed
The European Society of Radiology (ESR) informs its membership and its associated Institutional Members about the new General Data Protection Regulation (GDPR) of the European Union (EU,) which will apply from 25 May 2018. Radiologists and radiology departments should be prepared to comply with several new rules for…
M. Emilia Cambronero, Miguel A. Martínez, José Luis de la Vara, David Cebrián + 2 more
'David Cebrián' 'Valentín Valero' 'Shadi Aljawarneh'] This article presents a tool called GDPRValidator that aims to assist small and medium-sized enterprises (SMEs) that have migrated their services, or a part of them, to the cloud to be General Data Protection Regulation (GDPR) compliant when they manage and store…
M. Emilia Cambronero, Miguel A. Martínez, Luis Llana, Ricardo J. Rodríguez + 2 more
Data privacy is one of the biggest challenges facing system architects at the system design stage. Especially when certain laws, such as the General Data Protection Regulation (GDPR), have to be complied with by cloud environments. In this article, we want to help cloud providers comply with the GDPR by proposing a…
John Kingston
The General Data Protection Regulation (GDPR) is a European Union regulation that will replace the existing Data Protection Directive on 25 May 2018. The most significant change is a huge increase in the maximum fine that can be levied for breaches of the regulation. Yet fewer than half of UK companies are fully aware…
Supreeth Shastri, Melissa F. Wasserman, Vijay Chidambaram
In recent years, our society is being plagued by unprecedented levels of privacy and security breaches. To rein in this trend, the European Union, in 2018, introduced a comprehensive legislation called the General Data Protection Regulation (GDPR). In this article, we review GDPR from a systems perspective, and…
Jayashree Mohan, Melissa F. Wasserman, Vijay Chidambaram
With the arrival of the European Union's General Data Protection Regulation (GDPR), several companies are making signicant changes to their systems to achieve compliance. The changes range from modifying privacy policies to redesigning systems which process personal data. This work analyzes the privacy policies of…
Gerard Buckley, Tristan Caulfield, Ingolf Becker
We find the threat of fines has focused the corporate mind and made business more privacy aware. Organisationally, it has created new power bases within companies to advocate GDPR. It has forced companies, in varying degrees, to modernise their platforms and indirectly benefited them with better risk management…
Alexander Bernier, Fruzsina Molnár-Gábor, Bartha Maria Knoppers
As the adoption of digital health accelerates health research increasingly relies on large quantities of biomedical data. Research institutions scattered across a large number of jurisdictions collaborate in producing and analyzing biomedical big data. National data protection legislation, for its part, grows…
Andrea Carboni, Dario Russo, Davide Moroni, Paolo Barsocchi
Privacy by design within a system for assisted living, personalised care, and wellbeing is crucial to protect users from misuse of the data collected about their health. Especially if the information is collected through audio-video devices, the question is even more delicate due to the nature of these data. In…
Alex Bowyer, Jack Holt, Josephine Go Jefferies, Rob Wilson + 2 more
'David Kirk' 'Jan David Smeddinck'] In our data-centric world, most services rely on collecting and using personal data. The EU's General Data Protection Regulation (GDPR) aims to enhance individuals' control over their data, but its practical impact is not well understood. We present a 10-participant study, where each…
Regina Becker, Davit Chokoshvili, Adrian Thorogood, Edward S Dove + 4 more
'Fruzsina Molnár-Gábor' 'Alexandra Ziaka' 'Olga Tzortzatou-Nanopoulou' 'Giovanni Comandè'] Title: Abstract The General Data Protection Regulation (GDPR) of the European Union, which became applicable in 2018, contains a new accountability principle. Under this principle, controllers (ie parties determining the purposes…
Haleh Chizari, Nishkala Sattanathan, Amin Ardeshirdavani, Nasim Shabani + 4 more
Next-generation sequencing (NGS) has been increasingly used in a wide range of research communities and in routine clinical practice and leads to an ever increasing amount of sequencing data. Sequencing data comes with, several challenges such as sharing, storing, integrating, analyzing, and interpretion. The…
John M. M. Rumbold, Barbara K. Pierscionek
The EU offers a suitable milieu for the comparison and harmonisation of healthcare across different languages, cultures, and jurisdictions (albeit with a supranational legal framework), which could provide improvements in healthcare standards across the bloc. There are specific ethico-legal issues with the use of data…
Juexiao Zhou, Haoyang Li, Xingyu Liao, Bin Zhang + 4 more
Revoking personal private data is one of the basic human rights, which has already been sheltered by several privacy-preserving laws in many countries. However, with the development of data science, machine learning and deep learning techniques, this right is usually neglected or violated as more and more patients’…
Jacob Blindenbach, Jiayi Kang, Seungwan Hong, Caline Karam + 2 more
Cloud computing provides the opportunity to store the ever-growing genotype-phenotype data sets needed to achieve the full potential of precision medicine. However, due to the sensitive nature of this data and the patchwork of data privacy laws across states and countries, additional security protections are proving…
Meir Goldenberg, Loay Mualem, Amit Shahar, Sagi Snir + 1 more
DNA methylation data plays a crucial role in estimating chronological age in mammals, offering real-time insights into an individual’s aging process. The Epigenetic Pacemaker (EPM) model allows inference of the biological age as deviations from the population trend. Given the sensitivity of this data, it is essential…
Jingcheng Zhang, Yingxuan Ren, Man Ho Au, Ka-Ho Chow + 5 more
With the rapid developments in sequencing technologies, individuals now have unprecedented access to their genomic data. However, existing data management systems or protocols are inadequate for protecting privacy, limiting individuals’ control over their genomic information, hindering data sharing, and posing a…
David Froelicher, Juan R. Troncoso-Pastoriza, Jean Louis Raisaro, Michel A. Cuendet + 3 more
In biomedical research, real-world evidence, which is emerging as an indispensable complement of clinical trials, relies on access to large quantities of patient data that typically reside at separate healthcare institutions. Conventional approaches for centralizing those data are often not feasible due to privacy and…
Jonah Rosenblum, Juechu Dong, Satish Narayanasamy
Genomic data from a single institution lacks global diversity representation, especially for rare variants and diseases. Confidential computing can enable collaborative GWAS without compromising privacy or accuracy, however, due to limited secure memory space and performance overheads previous solutions fail to support…